Friday, January 30, 2009

Happy Birthday!


At 12:26pm today, my baby boy turns THREE! How is it possible that he's already three and how is it possible I didn't know him until three years ago? He is such a wonderful and integral part of my life!
He is an explorer and likes discovering how things function. He's also stubborn, just like his mama, and knows EXACTLY how *he* wants things to work.
And, of course, he adores his big sister! Absolutely adores her and they are the best of friends.

Happy birthday, baby boy!! I love you so much. May God bless you and keep you all the days of your life.

Thursday, January 29, 2009

Finally--the garage sale dresser!

Way back in July, I posted about a dresser I found at a garage sale. I paid $13 for this little beauty--a wood Bassett dresser. It was love at first sight, even if the dresser did need a bit of work!
Then in early September I posted about sanding and painting the dresser. And then subsequently needing to repaint the fronts of the drawers after Handsome decided to "paint" with a comb and scratched them up.
And then I left you hanging and never posted an "after" picture! Whoops!! So, here you have it--my $13 dresser in her spray-painted black finish with new shiny silver knobs from Target. The finish on it isn't perfect, but I really like it. I have it behind my family room sectional and it works well as a sofa table. It fronts onto the eating nook in my kitchen and is filled with crayons and other art supplies for my children. Love it! (Remember, you can click on the picture to make it bigger...and to see the sticky fingerprints I need to clean off the drawer fronts!)
Excuse the glare--the light was coming in from the sliding door on the left side of the picture and I don't have wood blinds there (yet--it's a gradual process!) to close. Still, doesn't it look pretty?! $13!! Right now it is decorated for Valentine's Day--I'll post pictures of my Valentine decorations in the next week or so.

If you're coming over from a link, click HERE to see my other decorating posts. And, of course, please comment and let me know you stopped by!

Tuesday, January 27, 2009

Topiary Transformation!

Remember those glittery, tacky, CHEAP topiaries I bought at TJ Maxx a couple of weeks ago? Well, they have been transformed! They started out as $4 Christmas clearance topiaries...full of glitter and poky bits.
A bit of black spray paint, loads of hot glue, and 1.5 bags of spanish moss...and they're done!
I think I like them (both now are done, although they weren't in these pictures)...but my husband just kind of nodded and smiled when I asked if he liked them. So, what do you think? Honest opinions, please!
I'm trying to decide if they're good enough to go on the fireplace mantel when I redo it, or do they need to be put up on an armoire where they're not quite at eye level.

Saturday, January 24, 2009

Medical Update

We were back at Children's Hospital yesterday for an appointment with our GI specialist. This time we did a lot of talking (two hours worth) and now we have a firm handle on what our plan is to help Handsome. Still no answers, but at least we have a plan.
First I will meet with a pediatric otolaryngologist (a really specialized ENT doctor) to discuss the scoping of Handsome's airway to check for structural abnormalities. We don't think this is a problem, but we need to cover this base just in case.

Next we will be scheduled at the hospital for all the testing to take place at once under anesthesia. He will be scoped (a camera) by the otolaryngologist. Then a GI surgeon will do an endoscopy (a different kind of camera) down his esophagus and into his tummy--checking for inflammation, thickening, and other abnormalities. The GI surgeon also will take some biopsies (teeny tiny ones--as small as a pinhead) of Handsome's tummy.

He'll also place a pH probe down Handsome's nose and into his esophagus. Handsome will wear this probe for 24 hours (and be attached to a small portable computer) while it records his reflux incidents. Typically the probe is placed fairly far down the esophagus, but with Handsome it will be put much higher up because with him the really big concern is how often the reflux is coming up to the point where he can aspirate it into his lungs.

Finally he'll have a 40 minute MRI without contrast done of his brain. This will be done to (hopefully!) rule out the possibility of Chiari Malformation.
After all of this (which will be about 3 hours under anesthesia), Handsome and I will stay in the hospital for 24 hours while the pH probe is taking place. Mainly we'll be there in case he pulls the probe out--other than that, there really isn't a medical reason for us to be in the hospital.

All of this should be completed in the next four weeks, hopefully less. They're moving him up the MRI list quite a bit because of the possibility of Chiari. Getting all of this testing done will, we hope, give us a direction to go in with Handsome's treatment. There are a lot of possibilities for what is going on with him. Chiari (especially in light of his swallowing problems) is a possibility. It's also possible that he has a severe allergy to something he's eating and his body is trying to get rid of it--we'll be able to tell that via the biopsies and by the endoscopy.

Another possibility is fundoplication surgery. This is when part of the upper part of the stomach is wrapped around the lower part of the esophagus--it tightens up the end of the esophagus so that food can still get through, but reflux can't come up.
So, there is a LOT going on here. Even though I don't have answers yet, I do like having a plan in place.

Thursday, January 22, 2009

Who wants a super hero cape?

Are these not the cutest superhero capes EVER?! Oh I just love them!! Unfortunately they usually cost $30 each...which is a bit out of my budget, especially since I would need two of them.

However, there is a super giveaway going on and you get TWO of these if you win!! So neat! So go over to Little Window Shoppe for your chance to win TWO superhero capes from Plum Pear Apple.

spring cleaning time!

I am so ready for spring and warm weather! However, since I can't control the weather, I decided at least I could get started on spring cleaning. This way when spring finally does arrive, I'll be ready to enjoy the weather (or, more likely, devote my time to cleaning up the yard...ugh!)--plus I like having things neat and organized.
Ugh, what a mess! This is the upper cupboard to the right of my stove. It is one of those really awkward cupboards where the shelf extends about a foot past the door...and I had it crammed full of stuff! There was a method to my cramming, but it was pretty messy and definitely needed to be organized!
Every single thing on my stovetop came out of that one cupboard. Pretend not to notice how much stuff is piled up...because it is a LOT. Candy molds, decorative strawberry dishes (I collect strawberry kitchen stuff), spare spices, lots and lots of cupcake sprinkles, molasses (multiple types!), the list goes on and on!
Ahhh, a clean and empty cupboard! Ignore the oak cabinetry that I really don't like at all...that's on the "will be changed a future date" list.
So much better! And look, I found more space! Woohoo! That space isn't empty any more...I bought a basket at the Dollar Tree and moved my children's extra prescription medicine up there so now it isn't tucked all in amongst my dishes in a different cupboard. My little ones take a lot of medicine and we order most things from the mail order pharmacy that ships three months of meds at a time...so the medicine situation was getting out of hand.

I'll spare you the pictures of the rest of my cupboards (especially since I'm not done yet!) but I must say, I feel such a sense of accomplishment when I open up the cupboards that are freshly purged and organized. At least I can have control over one area in my life!

Have you started your spring cleaning? Are you (like me!) someone who likes to purge and organize or are you (like my husband!) someone who wants to keep everything forever and ever?

Wednesday, January 21, 2009

Confusion and big decisions

Why oh why can't there be easy answers about what is going on with Handsome? After spending all afternoon at Children's Hospital, I came home more confused than ever.

He had another swallowing study done (a x-ray camera filmed video as he consumed barium laced products) and it showed that he still aspirates fluid every time he drinks. And, when he's eating, he sometimes doesn't realize he has food in the back of his mouth and thus doesn't swallow it. This likely is what is happening when he eats meat at home and probably is why he doesn't like it. Their theory is that, as a coping mechanism, his body has desensitized the back of his mouth/throat so that he doesn't feel as much pain from his reflux--but unfortunately this also means he can't swallow properly. They think that getting the reflux under control (we've been working on this for two years!) will help as will a bit of feeding therapy.

Unfortunately there is another theory on Handsome's swallowing problems. The pulmonologists think there is a chance he has Chiari Malformation. Basically their theory is that it is possible that part of his brain stem is pushing down into his spine and compressing the nerves there that control swallowing. So they want him to see a neurologist and go under sedation for a 40 minute MRI. While he's under anesthesia, they also want an ENT doctor to scope his nasal passages and make sure everything is connected properly.

The treatment for Chiari Malformation is a brain surgery, referred to as decompression surgery, where neurosurgeouns remove a really small portion of the patient's skull to provide more room for the brain.

SCARY STUFF!!!

After spending hours researching Chiari Malformation last night, I really really do NOT think this is Handsome's problem. There are two main types of this disease (and two others that are really rare and don't apply to him at all) and the first type is seen more in older children and adults--and most of those people experience blinding headaches that appear out of nowhere. The second type is seen almost entirely in children with spina bifida or hydrocephalus...and Handsome has neither of those.

Still, I can't entirely discount this...but I'm reluctant to put him through an MRI that I'm not entirely convinced he needs. I was convinced in the hospital yesterday, but now I'm not so sure.

We go back on Friday, but we'll be seeing the GI specialist this time.

Needless to say, my mind is spinning.

Tuesday, January 20, 2009

Good Thoughts, Please!

Today I am returning to Children's Hospital with Handsome for more testing. He turns three at the end of this month and still deals with increasingly worse reflux and, at our last visit to the hospital, was diagnosed with oral pharyngeal dysphagia. Basically every time he swallows liquid, he aspirates part of it into his lungs...and, given that he has reflux, he also is aspirating stomach acid into his lungs. Needless to say, this is not good!
It is especially bad because he's pretty much at the end of the window of opportunity for outgrowing these things--and dysphagia (he has two types) in a child his age is quite worrying. I'm not sure what is in his future, but I'm worried. Currently all we're doing is thickening all his liquids (which he seems to appreciate--not the reaction I was expecting from him!) and giving him inhaled steroids to strengthen his lungs. Future options include occupational therapy for his mouth, brain scans, and some very very invasive tests. We'll know more after his repeat fluroscopy and appointment with his pulmonologists.
We go back to Children's again on Friday to meet with our GI specialist and talk more about our options for addressing his reflux--which is worsening again. He's now on 30mg of Prevacid in the morning, 4 ml of Zantac and 15mg of Prevacid at night. Even at these increased dosages, he wakes up all night long and his sheets are covered with stomach acid in the morning. Poor little guy. He does a bit better with it during the day, but it still bothers him--and he is soooo tired from his poor sleeping.

Edit: On a different note, today my make-your-own puzzle post is being featured on No Time for Flashcards!

Monday, January 19, 2009

Clearance at Michaels!

Yesterday I went into Michaels and, of course, I bought WAY more than I went in there for--why does that always happen? I did find these three little signs on clearance for .49 each. There were others that weren't clearanced and they were a whopping $1 each...so still not too expensive.
The only problem is that the colors were all wrong! The "love" sign was a BRIGHT and gaudy pink. Pink is one of my favorite colors, but not this particular shade of pink! So, while my husband gave the children a bath, I quickly painted my little signs and hot glued ribbon onto the back of two of them.
The "love" sign I painted red with white polka dots and glued a red ribbon onto. Right now it is hanging on a lamp, but I'm not sure where its home will be--but it is a great little Valentine decoration and the price was right!
The "family" sign I'm not quite done with. I did paint it another shade of blue, but I don't like it yet...so no new pictures of that one! I decided the pink color of the princess sign would work for Princess's room, but it needed white polka dots too--and a ribbon to hang it on.
Right now I have it hanging from a small shelf in her room, but eventually I'd like to hang it from a rag garland that I still need to make. I think it will look cute tucked in amongst the rags.

Friday, January 16, 2009

Tying a Sash into a Perfect Bow

Awhile back I stumbled onto some instructions for tying a sash into a perfect bow. Princess, being a five year old little girl, looooves twirly dresses with big bows in the back. Usually I'm lucky enough to find dresses that have the sash permanently tied into a bow (often attached with a button) but this year's Christmas dress (from Gymboree) left it up to me to get the bow up to Princess's standards. Luckily I had my handy instruction chart! (Click on the picture to make it bigger)
It really is so easy with these instructions in front of you!
Oh wait, let me get her hair out of the way--can you believe how long it is?! Granted, the sash ties a bit above her waist, but still...her hair is getting loooong!
Okay, I probably should have redone it to get the ends the same length, but I didn't. And, I'm happy to say, the sash is very secure with this method. It didn't come undone at all!